Jacqui Kirby
Chief Corporate Affairs Officer
Ask a person living with an endocrine condition where advocacy happens. They usually won’t point to a headline or a Congressional hearing. Instead, they’ll often point to a series of everyday experiences: the appointment they arrived prepared for and finally left with answers, the night they found a community and realized someone else understood, or the moment they finally found the words for what they had been experiencing for years. For many, advocacy is not defined by milestones, but by the everyday work that surrounds their care.
For patients living with endocrine and endocrine-related conditions, arriving at that understanding can be a journey in itself. Conditions like acromegaly or Cushing’s disease can take years to diagnose, and it’s often through that process that patients begin to learn how to navigate their own care. Understanding how to communicate what you’re experiencing, what to track between visits, and how to ask the right questions is knowledge that accumulates over time, shaped by conversations, community, and hard-won experience.
That’s why we launched Everyday Advocacy, an initiative designed to give patients the tools, community, and knowledge to engage more actively in their own care, at every stage of their journey. Unlike programs built around discrete clinical milestones, Everyday Advocacy is designed for the moments in between: the appointment patients almost didn’t prepare for, the symptom they almost didn’t mention, or the question they didn’t know they could ask. Developed in close partnership with a steering committee of leading patient advocacy organizations, Everyday Advocacy brings together digital resources, live workshops, and the Acromegaly Symptom Diary app, a free mobile app designed to help patients track their experience and arrive better prepared for the conversations that matter.
At Crinetics, our commitment has always extended beyond advancing science to addressing the gaps in education, tools, and support that shape how people navigate complex disease. This program is designed to evolve alongside the patients it serves, expanding across disease areas and continuing to be shaped by the communities that guide it. Because meaningful progress doesn’t happen only at the point of treatment, it happens in the everyday moments that define the full experience of living with disease.
Everyday Advocacy is available now at EverydayAdvocacy.com. We invite patients, caregivers, and healthcare providers to explore the platform and share it with those who may benefit.
Learn more at EverydayAdvocacy.com
